How to support a client whose child is disabled
- For many of our clients with disabled children, they talk about the wonder but also the overriding fear of living with their child’s disability.
- The fear of ill health, their child being hurt, the trauma of hospital visits, the constant worry of getting meds right, the stress of managing carers.
- It’s a fear that leads to deep exhaustion. A worry that means they can be in a constant state of high-alert.
- And sometimes, that may affect their ability to process information and make decisions.
So as their adviser, what can you do to help?
- Try and be as flexible as you can with dates, times and formats when arranging meetings. Parent Carers may not have much free time. “What would work for you? Is there a time or day in the week that works better?”
- When you have a meeting, try and make it as positive and comfortable as possible. The meeting with you might be the only chance they’ve had to sit down that day. “Why not get a cup of tea and a biscuit whilst we chat online? It will give you the chance for a short rest whilst we catch up.”
- Take the time to understand the SEND landscape. Check out what is in the news and take the time to ask if it’s affecting their family.
- A Parent Carer may need more reassurance than other clients. Saying things in a supportive way that show you care and understand, will help. “It might be hard to talk and think about these things, but I’m here to help you work through them practically.”
- It’s ok to be empathically curious. It’s your job to really understand your client’s child’s needs in order that you can help them create a secure financial future. “Perhaps you can start by telling me about Joe’s life. What does it take to make sure he has a good day?”
There are some great organisations out there that can help you understand more about disabilities and support for families and carers. Disabled Children’s Partnership is a great place to start.